Resources
General Info
For more information about Lewy Body Dementia and other caregiver support services, contact:
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Lewy Body Dementia Association (LBDA) Lewy Line
Connect with licensed professionals at LBDA Support Services by calling 1-800-539-9767 or sending an email to support@lbda.org.
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Lewy Body Dementia Association (LBDA)
The LBDA is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy Body dementias, supporting people with LBD, their families and caregivers, and promoting scientific advances. Click here to visit their website.
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Eldercare Locator
If you are seeking information on care options in your local area, please call Eldercare Locator at 1-800-677-1176 or click here to visit their website.
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Lewy Body Dementia Resource Center
This organization also has a Helpline for LBD inquiries. Call 516-218-2026 or 833-LBD-LINE (833-523-5463). Or for more information about LBD, click here to visit their website.
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Lewy Body Society
This charity funds research and provides support for persons with LBD and their care partners in the UK. For help and information, call 0800 888 6678. Click here to visit their website.
Episode Resources
S1, E5 Hallucinations and Delusions? Go With the Flow
Webinar Replay: The Reality of LBD — Hallucinations & Delusions & How to Manage Them
Photo: Photograph of bedroom after acting out a compelling delusion
Website: How to Respond More Positively During Surprising Events in Dementia Care
Website: How to Respond to Unfounded Accusations When Dementia Is Involved
Website: When Your Spouse With Dementia Accuses You of Cheating
Video: Dementia Cheating Accusations
Website: Capgras Syndrome in Lewy Body Dementias
S1, E4 Keeping it Cool: Calming Communications Strategies
PDF: Calming Communications Strategies
Website: Teepa Snow's Positive Approach to Care
Video: Ten Simple Solutions for Alzheimer's Caregivers — Jo Huey
S1, E3 Is the Unpredictability of LBD Making You Anxious?
Website: The Presence Care Project Mindfulness-Based Dementia Care Program
Website: Predictable Phases or Stages? Guess Again.
Family Caregiver Guide: Caring for a Senior at Home
Facebook Group: Lewy Body Dementia Carers | For caregivers to share their frustrations and discuss difficult issues.
Facebook Group: LBDA Care Partner Support Group | For care partners of those living with LBD. Group provides support and guidance and shares information and resources.
S1, E2 Hindsight Is 20-20: Early Signs of LBD
Website: Mayo Clinic Lewy Body Dementia Symptoms & Causes
Website: 5 Early Signs of Lewy Body Dementia
Research Article: Characteristics of Initial Symptoms in Patients with Dementia with Lewy Bodies Disease
Online Forum: LBD Caring Spouses For spouses and partners of persons with LBD. It is not a Facebook group.
Journal Article: Research Criteria for the Diagnosis of Prodromal Dementia with Lewy Bodies