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Resources

General Info

For more information about Lewy Body Dementia and other caregiver support services, contact:

  • Lewy Body Dementia Association (LBDA) Lewy Line

    Connect with licensed professionals at LBDA Support Services by calling 1-800-539-9767 or sending an email to support@lbda.org.

  • Lewy Body Dementia Association (LBDA)

    The LBDA is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy Body dementias, supporting people with LBD, their families and caregivers, and promoting scientific advances. Click here to visit their website.

  • Eldercare Locator

    If you are seeking information on care options in your local area, please call Eldercare Locator at 1-800-677-1176 or click here to visit their website.

  • Lewy Body Dementia Resource Center

    This organization also has a Helpline for LBD inquiries. Call 516-218-2026 or 833-LBD-LINE (833-523-5463). Or for more information about LBD, click here to visit their website.

  • Lewy Body Society

    This charity funds research and provides support for persons with LBD and their care partners in the UK. For help and information, call 0800 888 6678. Click here to visit their website.

Episode Resources

S2, E1
Safety First: How to Protect Yourself if LBD Behavior Becomes Violent

S1, E5
Hallucinations and Delusions? Go With the Flow

Website: Lewy Body Dialogue, Chapter 1: Hallucinations from Outside and Inside, Conversations between a Thoughtful Woman With LBD and her Care Partner Husband

Webinar Replay: The Reality of LBD — Hallucinations & Delusions & How to Manage Them

Photo: Photograph of bedroom after acting out a compelling delusion

Website: How to Respond More Positively During Surprising Events in Dementia Care

Website: How to Respond to Unfounded Accusations When Dementia Is Involved

Website: When Your Spouse With Dementia Accuses You of Cheating

Video: Dementia Cheating Accusations

Website: Delusional Misidentification: A Difficult Problem for Some Alzheimer’s Patients — And for Their Caregivers

Website: Capgras Syndrome in Lewy Body Dementias

Website: When to Consider Antipsychotic Medications in LBD

Website: Lewy Body Dementia Resource Center: Medications

S1, E4
Keeping it Cool: Calming Communications Strategies

S1, E3
Is the Unpredictability of LBD Making You Anxious?

S1, E2
Hindsight Is 20-20:
Early Signs of LBD

S1, E1
Lewy Body 101:
The Roller Coaster Ride