Resources

General Info

Lewy Body Dementia Association (LBDA) Lewy Line

Connect with licensed professionals at LBDA Support Services by calling 1-800-539-9767 or sending an email to support@lbda.org.
Lewy Body Dementia Association (LBDA)

The LBDA is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy Body dementias, supporting people with LBD, their families and caregivers, and promoting scientific advances. Click here to visit their website.
Eldercare Locator

If you are seeking information on care options in your local area, please call Eldercare Locator at 1-800-677-1176 or click here to visit their website.
Lewy Body Dementia Resource Center

This organization also has a Helpline for LBD inquiries. Call 516-218-2026 or 833-LBD-LINE (833-523-5463). Or for more information about LBD, click here to visit their website.
Lewy Body Society

This charity funds research and provides support for persons with LBD and their care partners in the UK. For help and information, call 0800 888 6678. Click here to visit their website.

Website: Safety Plan for Caregivers

Website: How to Make A Go Bag When Leaving An Abusive Relationship

Interactive Form: Interactive Domestic Violence Safety Plan

PDF Form: Domestic Violence Personalized Safety Plan

Website: Lewy Body Dialogue, Chapter 1: Hallucinations from Outside and Inside, Conversations between a Thoughtful Woman With LBD and her Care Partner Husband

Webinar Replay: The Reality of LBD — Hallucinations & Delusions & How to Manage Them

Photo: Photograph of bedroom after acting out a compelling delusion

Website: How to Respond More Positively During Surprising Events in Dementia Care

Website: How to Respond to Unfounded Accusations When Dementia Is Involved

Website: When Your Spouse With Dementia Accuses You of Cheating

Video: Dementia Cheating Accusations

Website: Delusional Misidentification: A Difficult Problem for Some Alzheimer’s Patients — And for Their Caregivers

Website: Capgras Syndrome in Lewy Body Dementias

Website: When to Consider Antipsychotic Medications in LBD

Website: Lewy Body Dementia Resource Center: Medications

PDF: Calming Communications Strategies

Website: Teepa Snow's Positive Approach to Care

Video: Ten Simple Solutions for Alzheimer's Caregivers — Jo Huey

Video: Behaviors: Awareness, Attitude & Action 2021 Conference of the Dementia Alliance of North Carolina

Podcast: Joy Through Engagement— Changing Lives at Open Circle Adult Day Services by Alzheimer's Speaks

Book: Pathways to Well-Being with Dementia: A Manual of Help, Hope and Inspiration by the Dementia Action Alliance. Download the book for free or order a printed copy.

Book: Responsive Dementia Care: Fewer Behaviors Fewer Drugs by Helen Buell Whitworth MS, BS and James A. Whitworth (large print edition)

Website: The Presence Care Project Mindfulness-Based Dementia Care Program

Website: Predictable Phases or Stages? Guess Again.

Family Caregiver Guide: Caring for a Senior at Home

Facebook Group: Lewy Body Dementia Carers | For caregivers to share their frustrations and discuss difficult issues.

Facebook Group: LBDA Care Partner Support Group | For care partners of those living with LBD. Group provides support and guidance and shares information and resources.

Book: Loving Someone who has Dementia by Pauline Boss

Blog: 10 Ways Mindfulness Helps with Anxiety and Dementia