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General Info

For more information about Lewy Body Dementia and other caregiver support services, contact:

  • Lewy Body Dementia Association (LBDA) Lewy Line

    Connect with licensed professionals at LBDA Support Services by calling 1-800-539-9767 or sending an email to

  • Lewy Body Dementia Association (LBDA)

    The LBDA is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy Body dementias, supporting people with LBD, their families and caregivers, and promoting scientific advances. Click here to visit their website.

  • Eldercare Locator

    If you are seeking information on care options in your local area, please call Eldercare Locator at 1-800-677-1176 or click here to visit their website.

  • Lewy Body Dementia Resource Center

    This organization also has a Helpline for LBD inquiries. Call 516-218-2026 or 833-LBD-LINE (833-523-5463). Or for more information about LBD, click here to visit their website.

  • Lewy Body Society

    This charity funds research and provides support for persons with LBD and their care partners in the UK. For help and information, call 0800 888 6678. Click here to visit their website.

Episode Resources

S1, E3
Is the Unpredictability of LBD Making You Anxious?

Website: The Presence Care Project Mindfulness-Based Dementia Care Program

Website: Predictable Phases or Stages? Guess Again.

Family Caregiver Guide: Caring for a Senior at Home

Facebook Group: Lewy Body Dementia Carers  | For caregivers to share their frustrations and discuss difficult issues.  

Facebook Group: LBDA Care Partner Support Group | For care partners of those living with LBD. Group provides support and guidance and shares information and resources.    

Book: Loving Someone who has Dementia by Pauline Boss

Blog: 10 Ways Mindfulness Helps with Anxiety and Dementia

S1, E2
Hindsight Is 20-20:
Early Signs of LBD

Website: Mayo Clinic Lewy Body Dementia Symptoms & Causes

Website: 5 Early Signs of Lewy Body Dementia

Research Article: Characteristics of Initial Symptoms in Patients with Dementia with Lewy Bodies Disease 

Online Forum: LBD Caring Spouses For spouses and partners of persons with LBD. It is not a Facebook group. 

Journal Article: Research Criteria for the Diagnosis of Prodromal Dementia with Lewy Bodies